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Lillian Thiemann
Co-Founder & President
Lillian Thiemann
is the co-founder and President of Visionary Health Concepts, a health
and medical education company specializing in HIV and hepatitis (www.freehivinfo.com
and
www.freehepatitisinfo.com),
and the co-chair of the Women’s HIV
Collaborative of New York (www.womenscollaborative.com).
A former IVDU living with both hepatitis C and HIV, Lillian feels she
has been very fortunate to have many opportunities to serve the
community through her work with Visionary Health Concepts as well as
with the health and advocacy organizations she devotes so much time and
energy to. Some items of note and relevance include:
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Writer and editor of nationally-distributed
HIV and hepatitis educational programs for patients and healthcare
providers (too numerous to list) that are recommended by
national/state coalitions, libraries and the University of Illinois:
http://www.uic.edu/depts/lib/aidsbkrv/No53.html#952
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Community representative for FDA review in
2003 of a product for the treatment of hepatitis C (Pegasys®)
http://www.fda.gov/ohrms/dockets/ac/02/transcripts/3909T1.htm
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Writer of the
first, nationally distributed HIV/HCV patient education booklet in
1999, “Double Jeopardy: The HIV/HCV Co-Infection Handbook” adopted
by states across US in their own HCV materials:
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Collaborated on
the production a national patient survey, InfoDyne, which included
>50% HIV/Hepatitis
co-infected individuals (n=662), and presented the results at US
Conference on AIDS 2003:
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Founding member of
Hepatitis Action and Advocacy Coalition (HAAC), the Hep C Advocacy
Coalition and the Women’s HIV Collaborative of New York
Visionary Health
Concepts is a community-based education company that focuses on
providing language-appropriate education to individuals across the
spectrum of healthcare in HIV and hepatitis, including consumers,
secondary providers and physicians. Visionary Health designs its
educational programming based on research it conducts to discover
how
various types and formats of education work for the targeted audiences
and what
will make them most effective. An example of this is
InfoDyne, a study conducted
in conjunction with the University of Illinois that surveyed 662 diverse
HIV+ patients. The study was designed to help Visionary Health better
understand the information-seeking and learning dynamics of HIV+
individuals, how specific groups and subgroups best obtain information,
and how this behavior affects their treatment outcomes. Visionary
Health also conducts surveys and research in the physician community to
better understand how they access, evaluate and apply clinical trial
data to their clinical practices.
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Krista Heitzman Martel
Vice President
Krista Heitzman Martel graduated from the University of Michigan in 1993, where she majored in Economics and French. Not long after, she learned her sister was HIV-positive, and was deeply affected by the stigmas surrounding this diagnosis. Krista then moved to New York, and coincidentally found a job in a medical education company that specialized in HIV. Frustrated with the amount of accessible information available to her sister and family, she was thrilled when given the opportunity to help develop a women's peer-based treatment education training program - the HIV University Training Program. This program, based on the successful model created by W.O.R.L.D (Oakland, CA), introduced Krista to many amazing treatment and peer advocates who further strengthened her convictions on the need for appropriate HIV education.
Over the next 5 years, Krista became dedicated to developing and managing several programs that were targeted to empower HIV-positive women in both their treatment-making decisions and in accessing healthcare that fit their lifestyles. She continues this dedication in her work at
Visionary Health Concepts by striving to develop and design various programs that are both educational and empowering to the people they reach.
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Kenneth Ezelle
IT Manager
Kenneth Ezelle has been involved in the HIV community for over 17 years. He has spent many years working on Gay Immigration and Partnership Rights issues. Having spent considerable time working on gay multi-cultural issues, Kenneth has chaired several groups that have worked in the gay Asian community dealing with their particular issues involving cultural stereotyping relating to HIV and sexuality.
Kenneth has spent most of his life in the computer industry, and he brings to
Visionary Health Concepts a cutting–edge, technical expertise to fuel the growth of our web-based programming. In addition, Kenneth’s in-depth background in data tracking and customer service will help us continue to grow and better serve our clients and the HIV community as a whole.
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Robert J. Munk, PhD
Internal Advisor, Consulting Writer/Editor
Bob Munk has been living with HIV for over 20 years. For the past 7 years he has focused on AIDS research and treatment. His primary activity is to coordinate the New Mexico AIDS InfoNet, an internet-based HIV treatment information resource at
www.aidsinfonet.org. The InfoNet provides up-to-date fact sheets in non-technical language, in both English and Spanish. There are single-page fact sheets on over 100 topics. The InfoNet web site also includes a hyperlinked listing of over 500 HIV/AIDS web sites. The fact sheets are used by many AIDS service organizations as client handouts and in their peer education programs. Bob is a frequent speaker and writer on AIDS treatment topics. His articles have appeared in several major AIDS treatment publications. He has co-written several booklets with Lillian Thiemann, including "Immune Restoration in HIV," "Apples to Apples: The Guide to HIV Drug Potency," and "Resistance is Futile . . . Unless You're A Virus."
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Hector Arroyo Ph.D
Spanish Program Consultant
Earning his PhD at NYU in 1997, Hector has worked to further the missions of organizations in New York, San Francisco, and Puerto Rico including PWAC (NYC), Body Positive, and HIV/TIP, and has contributed to HIV publications like SIDA AHORA, Body Positive and Impacto. His collaborations with Lillian Thiemann started with Doble Riesgo, addressing HIV/HCV co-infection in the Hispanic community and includes all Spanish educational HIV Treatment forums and materials in the US and Puerto Rico, as well as The Starting from Scratch booklet. His HIV/HCV positive status enables him to optimize his educational outreach to the community with
Visionary Health Concepts.
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